... Had a fly upon his nose,
Peeeeeeeeeter rabbit had a fly upon his nose,
Peter rabbit had a fly upon his nose,
So he Flipped it
And He flapped it
Until the fly flew away...
FLOPPY EARS AND CURLY WHISKERSSSSSSSSS -
This is what I have been singing, For two hours.
I love my new painkillers
- Cookie
My Misadventures, tears and laughter as I deal with the process of being diagnosed with MS (Multiple Sclerosis), and learning to live with it's symptoms.
Saturday, 8 December 2012
Friday, 7 December 2012
Just when you think you know what is going on...
... The Opthamologist comes back and tells you your MRI's were apparently clear, they recommend a Evoked Potentials Test (already booked) and a follow-up with the Neurologist (already booked) but admit, frankly, they're stumped.
And they go and ask a more experienced colleague, who is also stumped.
"It could still be MS, sometimes it isn't clear from MRI scans... but we're going to have to discharge you, there actually aren't any more tests we can do, its down to Neurology now..."
I can also raise the number of consultants I've made say the following:
"I've never seen that before"
From one, to two!
I have to say, its days like that I am thankful for good friends. I spent an evening sat on the sofa of the Reverend Tez, who after discussing that MS was the immune system attacking the nerves, Logically pointed out that all I needed to do was get rid of my immune system and live in a giant, sterile hamster ball.
As I was near crying with laughter he looked straight at me and said;
"Well it sounded like a good idea in my head, although in reality, hill's could be a problem."
Yes, Because when you're living in an air-tight sterile hamster-ball, gentle inclines are likely to be your biggest concern.
So now I am going back to the hospital, to speak to them about todays flare-up caused by over-doing it.
Toodle Pip!
~ Cookie
And they go and ask a more experienced colleague, who is also stumped.
"It could still be MS, sometimes it isn't clear from MRI scans... but we're going to have to discharge you, there actually aren't any more tests we can do, its down to Neurology now..."
I can also raise the number of consultants I've made say the following:
"I've never seen that before"
From one, to two!
I have to say, its days like that I am thankful for good friends. I spent an evening sat on the sofa of the Reverend Tez, who after discussing that MS was the immune system attacking the nerves, Logically pointed out that all I needed to do was get rid of my immune system and live in a giant, sterile hamster ball.
As I was near crying with laughter he looked straight at me and said;
"Well it sounded like a good idea in my head, although in reality, hill's could be a problem."
Yes, Because when you're living in an air-tight sterile hamster-ball, gentle inclines are likely to be your biggest concern.
So now I am going back to the hospital, to speak to them about todays flare-up caused by over-doing it.
Toodle Pip!
~ Cookie
Sunday, 2 December 2012
Things to look forward to.
MS brings with it so much uncertainty. I thought this morning I would take a moment to look at what I have to be thankful for:
My children. Even though they're not with me, they are well cared for, happy, healthy and I have very regular contact. They can brighten up even the crappiest day, and watching them grow and learn is a pleasure and an honour.
Moving house. I am currently living in a hostel, but hopefully soon will have the good fortune to move to a council house that isn't up a couple of flights of stairs.
My parents and sister; despite rows, stress, worries and whatnot, they are always there for me. When it counts, I know I can count on them. I'm looking forward to spending time with them.
My partner; I am so thankful for him. As I type he is sleeping, I don't want to wake him just yet. He makes me so happy, the most wonderful, beautiful, kind and caring creature I have ever had the fortune to know, let alone call my own.
He leaves today. I'm dreading it. But I am looking forward to the day he can move over here, and when time together won't be punctuated with the sting of goodbyes.
I have a lot to look forward to, to be thankful for. If I were to believe in Karma, then realistically MS is a small price to pay, for what I have that brings happiness and joy.
- Cookie
My children. Even though they're not with me, they are well cared for, happy, healthy and I have very regular contact. They can brighten up even the crappiest day, and watching them grow and learn is a pleasure and an honour.
Moving house. I am currently living in a hostel, but hopefully soon will have the good fortune to move to a council house that isn't up a couple of flights of stairs.
My parents and sister; despite rows, stress, worries and whatnot, they are always there for me. When it counts, I know I can count on them. I'm looking forward to spending time with them.
My partner; I am so thankful for him. As I type he is sleeping, I don't want to wake him just yet. He makes me so happy, the most wonderful, beautiful, kind and caring creature I have ever had the fortune to know, let alone call my own.
He leaves today. I'm dreading it. But I am looking forward to the day he can move over here, and when time together won't be punctuated with the sting of goodbyes.
I have a lot to look forward to, to be thankful for. If I were to believe in Karma, then realistically MS is a small price to pay, for what I have that brings happiness and joy.
- Cookie
Subscribe to:
Posts (Atom)